When I first found out 9 years ago my son has Cystic Fibrosis, we were devastated. God and my church family literally wrapped their arms around us and helped us through. God held our hand and kept us through the agony of the unknown. Then when my daughter was diagnosed two weeks after birth, I knew that God was with us. We were of course still devastated, but having been through it with my son, I just knew that God had a plan, and he would bring us through.
The good things -
I've learned to depend more upon God - moment by moment - breath by breath.
I know that I do not need to have all the answers. I don't need to understand everything. My Father is in control. I can trust him.
I've learned to appreciate every day that I have with my children.
I'm learning to step back from situations that frustrate me and ask, "In the light of eternity, would this matter?" It helps me to have a reality check.
I think I have become more tender hearted toward others who are hurting.
I am learning to be more of a prayer warrior.
We have grown together so close as a family, through the bad times and the good.
We look for the good in situations more. We try to find the "silver lining" no matter how bleak the outlook.
My children have a maturity beyond their ages as a result of everything they have to go through.
The bad things?
My heart is still broken that my children are slowly dying of Cystic Fibrosis. However, God heals the broken hearted. I might not be totally healed this side of heaven, but He binds up the broken heart and helps me to function and thrive in the presence of His grace.
It hurts when my children are hurting and sick and there is nothing I can do.
I worry that I won't be here to care for my family.
I'm tired. I have fibromyalgia and MHE and deal with pain daily. The extra stress of caring for chronically ill children as well as being chronically ill myself can be tiring.
The road is a tough one, but God is carrying us through. I depend upon my Father more and know that He will use these circumstances for His glory.
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